The Western States Genetics Services Collaborative is a federally-funded, multi-state project that seeks to improve individual and family health throughout the life course. The participating states and territory are: Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington.

Our activities aim to increase access to and reduce disparities in newborn screening and clinical genetic and genomic services for individuals with or at risk for heritable disorders.

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Genetic Services Project, grant number H46MC24091-03-00, for $600,000. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.


Wiki Updates (Act Now)

Meeting Announcement for A Dialogue: Addressing and Paying for Genetic Services in Integrated Delivery Systems

Over the past decade the American College of Medical Genetics and Genomics (ACMG) has served as the HRSA-funded National Coordinating Center (NCC) for the seven Regional Genetic Service Collaboratives (RCs), with a goal of addressing gaps in access to and financing of genetic services across the lifespan and across healthcare delivery systems. At the time of the rollout of the ACA and the state exchanges ACMG/NCC was funded to take on several system-wide projects aimed at understanding the impact of the ACA on essential healthcare services and access for individuals with genetic conditions.

As the culmination of this work one of these projects, Genetic Considerations for Accountable Care Organizations and Integrated Care Delivery Systems, ACMG is convening a free national meeting of insurers, policymakers, healthcare providers, delivery systems, industry representatives, consumers, regional collaborative leadership, advocacy organizations, and public health on June 15, 2015 at the Hyatt Capitol Hill, Washington, D.C. The goal of the meeting is to engage as broad a group of thought-leaders and stakeholders as possible to further identify essential genetic/genomic healthcare services and the approaches and barriers to providing those needed services. Through a structured dialogue ACMG hopes to identify gaps and feasible solutions that can be developed into a framework the NCC/RC system can use to collaborate with integrated delivery systems and payers to move towards solutions that will improve access to and availability of genetic service across the lifespan and across service delivery systems.

Meeting Objectives

  • To identify the genetic/genomics services needed and the approaches and barriers to providing those needed services.
  • To initiate a dialogue among genetic providers, experts and consumers and representatives of delivery systems, purchasers and payers of services designed to support the development of appropriate delivery system options and payment for genetic services.
  • To develop a plan for the NCC/RCs to collaborate with integrated delivery systems and payers to implement solutions that will improve access and availability of genetic services.

To register for the meeting and view the preliminary agenda, go to:

Link to Affordable Care ActOur new Affordable Care Act (ACA) website is now available! We’ve worked hard to make the website both informative and easy to understand. The website contains information about the ACA and how it affects people throughout the life course. To go to the website, click here.

We also have a text-only version of our Affordable Care Act website for those who are visually impaired. To access this site, click here.

Genetics and Newborn Screening Updates