Aug 31 2021

WSRGN 2021 Pandemic Survey

Published by under Announcements

Coming soon to your email box is the follow-up to last years “WSRGN – Telegenetics and the COVID-19 Pandemic” survey. Please be on the lookout for a link to the survey, as your response will help us better understand the pandemic’s effect on telegenetics.

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Aug 31 2021

Second Annual WSRGN Virtual Genetic Counselor Career Fair 2021 Announced

Published by under Announcements

The WSRGN will be holding our second annual Virtual Genetic Counselor Career fair for two days, September 28th and 30th, to allow more students to visit. Genetic counseling is a unique and rewarding healthcare profession, and this virtual fair will help those interested to learn all about it!

Join the fair to learn about this exciting profession, hear from professional societies, and connect with over 50 graduate degree genetic counseling programs across North America. Graduate programs and professional societies will have virtual “rooms” for students to visit and learn more about degree requirements, program information, and all other information about becoming a genetic counselor!  We will also have a Minority Genetic Professionals Network for minority students that visit the Career Fair.  Link to registration: bit.ly/gcfair2021

Please help us disseminate information about the Career Fair

We have created a Social Media Toolkit for you to easily share info about the career fair. The toolkit includes example email blasts, Facebook, Instagram, and Twitter posts, accompanying graphics/flyers of appropriate size for each, and versions of each graphic/post focused on recruitment within diverse populations (these are labelled as ‘MGPN Versions’). Click here for the full toolkit.

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Aug 31 2021

Newborn Screening Information Center

Published by under Announcements

HRSA shared that in October 2020 they initiated a launch of the legislatively mandated newborn screening information clearinghouse, the Newborn Screening Information Center (NBSIC). The NBSIC provides up-to-date information, materials, and resources about NBS in the United States. These resources help increase awareness, knowledge, and understanding of NBS and genetic conditions. Updates to the site occur quarterly, with NICHQ reaching out directly to a subset of states and territories via email and then a follow-up phone call. HRSA plans on doing a public launch in 2022 once all states and territories have had an opportunity to confirm their information.

If you have questions or concerns, please reach out to via email: newbornscreeninginfo@hrsa.gov

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Aug 31 2021

Advisory Committee on Heritable Disorders in Newborns and Children

Published by under Announcements

The next meeting of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC or Committee) will be held via webcast on Thursday, August 12, 2021, from 10:00 a.m. – 2:15 p.m. Eastern Time (ET) and Friday, August 13, 2021, from 10:00 a.m. – 2:00 p.m. ET. Meeting time is subject to change.

  • Registration: This meeting will be open to the public but advance registration is required. Please register onlineby 12:00 p.m. ET on August 11, 2021. For technical support accessing the registration website, please email achdncmeetings@lrginc.com.

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Aug 31 2021

Translation of Our Acclaimed What to Expect from a Telehealth Visit

Published by under Resources

Updated Mandarin Chinese/Traditional Text translation of our acclaimed What to Expect from a Telehealth Visit: “遠距醫療看診須知 (普通話配音,繁體文本)”

  • The WSRGN has updated its Mandarin translation with traditional characters of the What to Expect from a Telehealth Visit. This is the update to the fourth of several translations to come out this year.
  • https://youtu.be/pg4qzmPCEeI

Mandarin Chinese/Simplified Text translation of our acclaimed What to Expect from a Telehealth Visit: “远距医疗看诊须知 (普通话画外音,简体字)”

  • The WSRGN has created a Mandarin translation with simplified characters of the What to Expect from a Telehealth Visit. This is the fifth of several translations to come out this year.
  • https://youtu.be/F8hGiV5MVJU

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Aug 31 2021

Best Practices for Advancing Cultural Competency, Language Access, and Sensitivity Toward AAPIs

Published by under General

The US Department of Health and Human Services’ Office of Minority Health (OMH) seeks input from Asian American & Pacific Islander (AAPI) communities and AAPI-serving organizations to inform the development of guidance for advancing cultural competency, language access, and sensitivity toward AAPIs in the context of the Federal Government’s COVID-19 response. OMH also seeks comments on best practices set forth by public health organizations and experts for mitigating racially discriminatory language in describing the COVID-19 pandemic.

  • The deadline to submit comments is August 17
  • More information HERE.

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Aug 31 2021

ISCC-PEG Scholars Program

Published by under General

The ISCC-PEG Scholars Program as an excellent opportunity for trainees and students with an interest in genetics/genomics and education.  ISCC-PEG is an NHGRI committee focused on healthcare provider genomics education (gov/iscc).  Members collaborate to identify educational needs and potential solutions, share best practices in educational approaches and develop educational resources.  Membership includes over 180 representatives from societies, professional organizations, NIH institutes, industry as well as individuals with expertise in medical education.

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Aug 31 2021

APHL Newborn Screening Symposium 2021

Published by under General

The APHL Newborn Screening Symposium addresses state, national and international newborn screening, genetic testing and policy issues important to public health newborn screening systems. Reports from around the globe, the challenges faced and the data generated are emphasized. Topics include molecular technologies, current and upcoming conditions, quality improvement, communicating with families and the public, and short- and long-term follow-up.

  • ​The purpose of this symposium is to enhance participant knowledge of national and international newborn screening and genetics as related to emerging laboratory technologies, follow-up, candidate conditions, quality improvement and clinical outcomes.
  • October 5-14 | Tuesdays, Wednesdays and Thursdays | Virtual Conference
  • Registration: https://www.aphl.org/conferences/NBS-Symposiums/Pages/default.aspx

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Jun 23 2021

Telehealth Training for Family Advocate and Other Program Staff

Published by under Resources

The WSRGN continues to offer the free online telehealth training course for family advocates and other program staff that want to have a foundation of telehealth to help the families they serve.  The seven module course takes less than two hours to complete and the trainee receives a certificate of completion after they finish the course.

Anyone interested in taking the training course can go to: https://www.familytelehealthtraining.org/. Just register and do the modules at your own pace.

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Jun 23 2021

Transconverted “What to Expect from a Telehealth Visit” animated videos

Published by under Resources

The WSRGN has transconverted the animated video: “What to Expect from a Telehealth Visit” into Samoan and Mandarin Chinese:

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