Dec 31 2020

HRSA’s New Newborn Screening Info Center Website

Published by under Resources

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Dec 31 2020

Spanish Translation of our acclaimed What to Expect from a Telehealth Visit: “Qué esperar de una visita de telesalud”

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The WSRGN has created a Spanish translation of the What to Expect from a Telehealth Visit. This is the first of several translations to come in the new year. The video will be on the WSRGN website soon.

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Dec 31 2020

Updated version of our acclaimed What to Expect from a Telehealth Visit video

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The WSRGN has updated the “What to Expect from a Telehealth Visit” video with advice on requesting a translator if needed. The new video will be on the WSRGN website soon.

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Dec 31 2020

The National Research Mentoring Network (NRMN) presents diversity, equity and inclusion (DEI)-focused webinars to celebrate National Mentoring Month.

Published by under Education

  • January 14, 2021: The role of mentoring in promoting DEI in STEM education and research
  • January 21, 2021: How to be an effective mentor for Underrepresented STEM trainees.
    • Register in advance here

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Dec 31 2020

New Disorders Workgroup Winter Webinar Series

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  • The Association of Public Health Laboratories (APHL) NewSTEPs is pleased to announce the first webinar in the New Disorders Workgroup Winter Webinar Series on Thursday, January 21, 2021, from 2:00 – 3:30 pm ET. This three-part webinar series will provide updates from programs screening for disorders not currently on the RUSP, both as pilot programs and as components of universal screening. This series will end with a discussion of future disorders that have been nominated for review by the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) and/or are in current pilots.
  • Please use this link to register for the webinar.

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Dec 31 2020

Winner of HRSA’s Care Coordination for Children with Special Health Care Needs Challenge

Published by under Announcements

  • HRSA’s Maternal and Child Health Bureau (MCHB) announced the winner of the Care Coordination for Children with Special Health Care Needs (CSHCN) Challenge. The Caremap app was developed and tested by a multidisciplinary team from National Family Voices, Boston Children’s Hospital, and Duke Health. The team will receive a $130,000 cash prize.

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Jul 29 2020

The Minority Genetic Professionals Network (MGPN) supporting minority students and practicing genetics professionals

Published by under Announcements

There is no better time than now for racially and ethnically diverse students and professionals to join the MGPN. The MGPN is hosting several events in the coming months to support members in this time of isolation. These include workshops in healing from racial trauma, roll-out of a new-and-improved mentorship program, a virtual career fair, webinars featuring professional speakers, and much more.

Go to minoritygenetics.org to resister and find more information.

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Jul 29 2020

Save the Date for APHL 2020 NBS Virtual Symposium

Published by under Announcements

In place of APHL’s traditional in-person Newborn Screening Symposium, they are hosting the APHL 2020 Newborn Screening Virtual Symposium, an online event that will address state, national and international newborn screening, genetic testing and policy issues important to public health newborn screening systems. The virtual symposium will feature live and on-demand content, an interactive poster hall, an opportunity to engage with industry partners and representatives, as well as fun and engaging activities! Sessions will run from October 20 – November 12, with up to three sessions per day on Tuesdays and Thursdays (excluding holidays). Sessions will continue to be made available to attendees after the live event concludes. Access to e-poster presentations and the virtual exhibitor hall will be accessible throughout the symposium.

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Jul 29 2020

Save the Date: Advancing the Response to COVID-19 for Minority Communities

Published by under Announcements

The HHS Office of Minority Health (OMH)will host a virtual symposium on Thursday, September 17, 2020 to highlight state, Tribal, territorial and community-based efforts to address COVID-19 among racial and ethnic minority populations. The Advancing the Response to COVID-19: Sharing Promising Programs and Practices for Racial and Ethnic Minority Communities virtual symposium aims to support and disseminate promising practices, programs and strategies for combating COVID-19, especially in communities of color.

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Jul 29 2020

Advisory Committee for Heritable Disorders in Newborns and Children August meeting

Published by under Announcements

The next meeting for the Advisory Committee on Heritable Disorders in Newborns and Children will be held via webcast on Thursday, August 6, 2020, from 1:00 PM – 4:05 PM Eastern Time (ET) and Friday, August 7, 2020, from 10:00 AM – 1:30 PM ET. Meeting times are subject to change.

Registration: This meeting will be open to the public but advance registration is required. Please register online <https://www.cvent.com/d/jnq529> by 12:00 p.m. ET on August 5, 2020. For technical problems gaining access to the registration website, please email Amy Lang.

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