Archive for July, 2012

Jul 12 2012

Newborn Screening Publication Regarding Birth Prevalence of Disorders

Published by under Announcements

We would like to congratulate Lisa Feuchtbaum from the California Department of Public Health on her recent publication entitled, “Birth prevalence of disorders detectable through newborn screening by race/ethnicity.” This article was published in Genetics in Medicine on July 5th as an e-publication. To read the abstract, go to: http://www.ncbi.nlm.nih.gov/pubmed/22766612?dopt=Abstract

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Jul 10 2012

Providing Newborn Screening Specimens for Research: Legal Issues Faced by State Health Departments

Published by under Education

The Newborn Screening Translational Network (NBSTRN), the Network for Public Health Law, the National Newborn Screening and Genetics Resource Center (NNSGRC), and the Association for Public Health Laboratories (APHL) are jointly presenting a webinar series covering legal issues and related ethical and policy issues concerning secondary uses of dried blood spots and associated data.

The next webinar in this series, Protection of Human Research Subjects, is scheduled for Thursday, July 26 at 1:00pm Eastern.

For more information, click here.

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Jul 10 2012

Time Out for Genetics: Myths of Primary Care Providers and Patients/Families Regarding Genetics—Setting the Record Straight

Published by under Education

The next webinar of the Time Out for Genetics webinar series, Myths of Primary Care Providers and Patients/Families Regarding Genetics—Setting the Record Straight, will take place on Thursday, July 26 from 12:00-12:30pm Central. Reserve your spot now!

This educational webinar series is presented by the Genetics in Primary Care Institute (GPCI) — a cooperative agreement between the American Academy of Pediatrics and the Maternal and Child Health Bureau. The objective of this 10-part webinar series is to increase awareness and education regarding the provision of genetic medicine in primary care practice. It is designed for primary care clinicians, pediatricians, pediatric sub-specialists, family physicians, nurse practitioners, genetic counselors, geneticists, and other stakeholders.

For more information and to register, please visit: http://www.medicalhomeinfo.org/GPCI.aspx#webinar

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Jul 06 2012

APHL Awarded Cooperative Agreement for the Newborn Screening Technical Assistance and Evaluation Program

Published by under General

The Association of Public Health Laboratories (APHL) has been awarded a five-year cooperative agreement of up to $4.1 million by the Genetics Services Branch of the U.S. Health and Human Services Health Resources and Services Administration (HRSA) to develop and manage the Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). NewSTEPs will provide quality improvement initiatives for newborn screening systems, a new data repository, and technical and educational resources to state newborn screening programs and stakeholders. For more information, go to: http://www.marketwire.com/press-release/APHL-Awarded-Multi-Million-Dollar-Cooperative-Agreement-Newborn-Screening-Technical-1663350.htm

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