Archive for August, 2013

Aug 28 2013

Webinar on Implementing the Affordable Care Act for Adolescents and Young Adults: Practical Considerations

Published by under Education

Full implementation of the Affordable Care Act (ACA) starts in January and the Health Insurance Marketplace launches on October 1. This interactive webinar, hosted by HRSA/MCHB, examines a trio of practical topics pertinent to adolescents and young adults as we prepare for ACA’s rollout:

Date: Wednesday, September 11, 2013
Time: 1:00-2:30pm EST

Agenda:
“Can we assure confidentiality in health care services for adolescents and young adults? Impact of Affordable Care Act insurance provisions on a vital patient right”
Claire D. Brindis, DrPH
Caldwell B. Esselstyn Chair in Health Policy
Director, Philip R. Lee Institute for Health Policies Studies
Professor of Pediatrics and Health Policy
Executive Director, National Adolescent Health Information and Innovation Center
University of California, San Francisco

“Young adults and the Affordable Care Act”
Amy Lin, MPA
Deputy Policy and Organizing Director
Young Invincibles

“A state’s experiences in preparing for the Affordable Care Act: Providing for the needs of adolescents and young adults”
Rachel A. Samsel, MSSW
Director, Office of Healthcare Delivery Redesign
Center for Program Coordination and Health Policy
Texas Department of State Health Services

To register: http://learning.mchb.hrsa.gov/LiveWebcastDetail.asp?leid=344

Can’t attend the webcast? Register now and receive a notification when an archive of this event is available to watch on-demand!

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Aug 27 2013

Advisory Committee on Heritable Disorders in Newborns and Children Meeting Scheduled for Sept. 19 and 20

Published by under Announcements

The 2nd meeting of the Secretary’s Discretionary Advisory Committee on Heritable Disorders in Newborns and Children will be held as a webinar. The meeting is scheduled to begin on Thursday, September 19, 2013 tentatively at 10:00 a.m. EST and continue until 2:15 p.m. EST, followed by Subcommittee meetings from 2:30 p.m. until 4:30 p.m. EST. The meeting will resume on Friday, September 20, 2013 from 9:00 a.m. until 3:10 p.m. EST.

Registration: The meeting is open to the public via webinar. Individuals are asked to register for the meeting at https://www.blsmeetings.net/SACHDNC/index.cfm. The registration deadline is Wednesday, September 11, 2013. For questions/concerns about registration, please email Sydney Vranna at Seamon Corporation: svranna@seamoncorporation.com.

Agenda: The meeting will include: (1) a report on https://www.blsmeetings.net/SACHDNC/index.cfmassessing the impact of the Committee’s recommendations on long-term follow-up on state newborn screening programs, (2) a discussion on the policy impact of the Committee’s previous recommendations regarding sickle cell trait screening in athletes, (3) a presentation on genome sequencing, (4) a panel on the Affordable Care Act, and (5) updates on priority projects from the Committee’s Laboratory Standards and Procedures, Follow-up and Treatment, and Education and Training subcommittees.

Agenda items may be subject to change as necessary or appropriate. All meeting materials are located on the Advisory Committee’s website at http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders

Public Comments: Members of the public may register to present oral comments and/or submit written comments. All comments, whether oral or written, are part of the official Committee record. Advanced registration is required to present oral comments. The public comment period is scheduled for the morning of September 20, 2013.

Written comments may be submitted at https://www.blsmeetings.net/SACHDNC/index.cfm. Written comments should identify the individual’s name, address, email, telephone number, professional or business affiliation, type of expertise (i.e., parent, researcher, clinician, public health, etc.), and the topic/subject matter of comment. Individuals who wish to make oral comments are required to register for the meeting by Wednesday, September 11, 2013 at https://www.blsmeetings.net/SACHDNC/index.cfm. To ensure that all individuals who have registered to make oral comments can be accommodated, the allocated time may be limited. Individuals who are associated with groups or have similar interests may be requested to combine their comments and present them through a single representative. No audiovisual presentations are permitted. For additional information or questions on public comments, please contact Lisa Vasquez, Maternal and Child Health Bureau, Health Resources and Services Administration; telephone: (301) 443-1080; email: lvasquez@hrsa.gov.

Contact Person:
Debi Sarkar, MPH
HRSA MCHB Genetic Services Branch
5600 Fishers Lane
Room 18A-19 Rockville, Maryland 20857
Telephone: (301) 443-1080
Email: dsarkar@hrsa.gov

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Aug 26 2013

Webinar on: Ethical, Legal, and Social Issues in Whole Exome and Genome Sequencing

Published by under Education

Whole exome and whole genome sequencing are two very new testing techniques that are poised to change the current paradigm of clinical genetic testing. To get ready for these up-and-coming tests, the WSGSC has organized a webinar series to discuss whole exome and whole genome sequencing and their potential applications.

As the third speaker in this series, Kevin Fitzgerald, SJ from Georgetown University will discuss ethical, legal, and social issues associated with whole exome and whole genome sequencing.

Feel free to invite other colleagues who may be interested in this subject to join the webinar!

Title: “Ethical, Legal, and Social Issues in Whole Exome and Whole Genome Sequencing”
Date: Friday, September 13, 2013
Time: 2:00 PM – 3:00 PM PDT

Register now by clicking the link below: https://www4.gotomeeting.com/register/207295479

After registering you will receive a confirmation email containing information about joining the Webinar.

Dates and times for the time zones in our region:

Guam: Saturday, 9/13 at 7am
Hawaii: Friday, 9/13 at 11am
Alaska: Friday, 9/13 at 1pm
CA, OR, WA: Friday, 9/13 at 2pm
Idaho: Friday, 9/13 at 3pm

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Aug 23 2013

Webinar on Engaging Families and Professionals with Social Media

Published by under Education

The National Genetics Education and Consumer Network is hosting a webinar for the regional collaborative on Engaging Families and Professionals with Social Media.

The webinar will be held on Monday, September 16 from 11:00-12pm Pacific time (see below for dates and times in other time zones). For more information or to register, go to: https://attendee.gotowebinar.com/register/5332160056717775104

Other Time Zones:

  • Guam: Tuesday, Sept 17 from 4:00am-5:00am
  • Hawaii: Monday, Sept 16 from 8:00am-9:00am
  • Alaska: Monday, Sept 16 from 10:00am-11:00am
  • CA, OR, WA: Monday, Sept 16 from 11:00am-12:00pm
  • Idaho: Monday, Sept 16 from 12:00pm-1:00pm

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Aug 06 2013

NCC Collaborator – August Edition

Published by under Announcements

The August edition of the NCC Collaborator is available! This issue focuses on new activities and projects. To view the August edition of the NCC Collaborator, click here.

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Aug 06 2013

California Department of Public Health is Seeking a Chief for the Genetic Disease Screening Program

Published by under Announcements

The California Department of Public Health is looking for a physician to be the new chief of the Genetic Disease Screening Program. The chief will provide guidance and leadership to the state’s newborn and prenatal screening programs. For more information, click here. The California Department of Public Health is looking for a physician to be the new chief of the Genetic Disease Screening Program. The chief will provide guidance and leadership to the state’s newborn and prenatal screening programs. For more information, click here.

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