Archive for May, 2017

May 05 2017

WSGSC to host a Family Advocates Meeting on May 22-23, 2017 in Honolulu, HI

Published by under Announcements

The WSGSC is hosting a Family Advocates meeting in Honolulu, HI to bring together representatives from Family to Family Health Information Centers and Family Voices (F2F/FV) organizations from each state/territory of the WSGSC, as well as genetics specialists. We will be focusing on the resources (including web and app-based) that are needed by the F2F/FV organizations, and develop a plan to expand these resources amongst the other regional genetics collaboratives.

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May 05 2017

Save the Date: Regional Summit on October 1-3, 2017 in Seattle, WA

Published by under Announcements

This year’s Regional Summit will be held in Seattle, WA on October 2-3, 2017 with a Family Advocates Work Group meeting scheduled for October 1, 2017.  Save the date on your calendars! We will begin contacting participants with details and travel coordination later this summer.

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May 05 2017

WSGSC and Heartlands Telegenetics Training Session in Tuscon, AZ a Great Success

Published by under Telehealth

The WSGSC and Heartland Genetics held a training session in Tuscon, AZ this April, which was a great success. The purpose of the training, which also includes webinars and completion of a series of online modules prior to the in-person meeting, is to introduce genetics providers to telemedicine equipment and how to incorporate telegenetics into clinical practice.

Please contact michelle@hawaiigenetics.org if you or a genetics provider you know is interested in future training dates.

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May 05 2017

Next ACHDNC Meeting to be held on May 11-12, 2017

Published by under Announcements

The next meeting of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) is scheduled for May 11-12, 2017. This meeting will be available in-person in Rockville, MD and via webinar. For more information, go to: https://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/

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May 05 2017

WSGSC and NCC Telegenetics and Evaluation – Health Outcomes Project

Published by under Telehealth

The WSGSC is working with the NCC Telegenetics and Evaluation Workgroups to plan and implement a series of meetings where genetic providers will identify health outcomes of genetics services that can be used to demonstrate the benefits and advantages of services provided, whether in-person or via interactive video-conferencing. Genetics providers from several regional collaboratives, including genetic counselors from the WSGSC will participate. The project is scheduled to conclude May 31, 2017, with the end of the current grant cycle.

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May 05 2017

Check out the latest NCC Collaborator Newsletter

Published by under General

Check out the latest NCC Collaborator Newsletter, for the final monthly newsletter of the 2012-2017 award period.

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May 05 2017

Family and Baby Expos in Seattle and Sacramento

Published by under General

To continue to better understand parents’ attitudes towards newborn screening for later onset disorders, education needs, and preferred contact methods, the Hawaii Genomics Section designed and distributed a short survey at the Seattle Family Expo on March 18 and 19, and the Sacramento Kids Expo on April 9 and 10. New and expectant parents coming to our booth were very interested in newborn screening, and we collected hundreds of completed surveys.

Huge and sincere thanks to the Washington and California State Departments of Health for all their time and invaluable help!

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May 05 2017

NCEMCH Video: Where to Find Maternal and Child Health Resources

Published by under Education

The National Center for Education in Maternal and Child Health (NCEMCH) has released a video, ‘Where to Find MCH Resources: An Introduction’, by John Richards and Keisha Watson. This 20 minute overview introduces sources of public health information for the MCH workforce, as well as proposes the need for further sources.

 

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