Apr
24
2008
The Newborn Screening Saves Lives Act of 2007 has been signed by the President on April 24, 2008! This bill establishes grant programs to provide for education and outreach on newborn screening and coordinated follow-up care once newborn screening has been conducted. Congress will still need to appropriate funds for the bill. For more information, go to http://www.govtrack.us/congress/bill.xpd?tab=summary&bill=s110-1858.
Apr
10
2008
The CDC has announced a funding opportunity entitled “Genomic Applications in Practice and Prevention (GAPP): Translation Programs in Education, Surveillance, and Policy.” Potential projects should develop programs in policy, surveillance, or education related to genomic tests, family history, and other genomic interventions with the goal of improving health and preventing disease in large, well-defined populations or practice settings in the United States. Award amounts range from $150,000 to $300,000. The application deadline is June 6, 2008. For more information, go to: http://www.cdc.gov/od/pgo/funding/GD08-801.htm
Apr
10
2008
The Children’s Hospital in Aurora, CO is sponsoring a Metabolic University from September 13-17. Metabolic University is targeted to professionals who are new to the field or need a refresher course in inborn errors. For more information, or for registration forms, please contact: Laurie Bernstein MS RD FADA at Bernstein.Laurie@tchden.org or 303-724-2341.
Apr
02
2008
The California Department of Public Health’s Genetic Disease Screening Program is holding a Maternal PKU Camp/Conference at California State University, Northridge from August 3-8. All young women aged 14 and older are invited to attend. For more information, click on the attached mpku_brochure08.pdf