Jun 06 2016
Archived webinar available: Inborn Errors of Metabolism Collaborative (IBEMC) efforts to inform the states in the WSGSC
The Inborn Errors of Metabolism Collaborative (IBEMC) systematically collects information about the clinical progress of people that have conditions identified by newborn screening, focusing on inborn errors of metabolism. Data is used to learn about their survival, medical status, and long-term outcomes; and permit development of evidence-based practice in patient care.
Presenters on this webinar include Susan Berry, Mat Edick and Sally Hiner. Susan Berry is with the University of Minnesota and is the Clinical Co-PI for the IBEMC. She has been involved from its inception, bringing the concept to the Region 4 Genetics Collaborative, and working to develop and implement long-term follow up for IBEM first as a workgroup, later as a HRSA Priority Project and most recently as an NIH supported R01. Mat Edick joined MPHI (Michigan Public Health Institute) in April of 2015 as the Senior Research Scientist for the IBEMC. Sally Hiner, also with MPHI is the IBEMC Senior Project Coordinator and has also been with the project from its beginning with Region 4.
Recording of the webinar is available here.
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