Archive for the 'Education' Category

Aug 10 2017

Newborn Screening Educational Videos for Online Resource Library

Published by under Education

The Colorado School of Public Health (CSPH) in collaboration with the Association of Public Health Laboratories (APHL) through the NewSTEPs 360 project is partnering with the Newborn Screening Clearinghouse housed at Baby’s First Test at Genetic Alliance to develop an online resource library for educational videos developed by and for newborn screening (NBS) programs, partners, and stakeholders.

If you have developed or know of an educational video that isn’t listed below that could be included in the library with appropriate permissions, please email Jaclyn Seisman at jseisman@geneticalliance.org or Joshua Miller at joshua.i.miller@ucdenver.edu and include 1) the name of the video, 2) the URL where the online video can be accessed, 3) a short description on the content of the video, and 4) any instruction on how the video can be accessed if not available to the public.

List of NBS Educational Videos Gathered Thus Far: http://bit.ly/2py5JPV

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May 05 2017

NCEMCH Video: Where to Find Maternal and Child Health Resources

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The National Center for Education in Maternal and Child Health (NCEMCH) has released a video, ‘Where to Find MCH Resources: An Introduction’, by John Richards and Keisha Watson. This 20 minute overview introduces sources of public health information for the MCH workforce, as well as proposes the need for further sources.

 

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Jun 06 2016

NYMAC features X-linked Adrenoleukodystropgy (XALD) Symposium Talks- a collection of videos about XALD and NBS

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NYMAC put together a collection of videos about XALD and NBS. Below are link to all the videos compiled by NYMAC.

To view these links and more videos on other topics you can go to this NYMAC page.

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Jun 06 2016

Archived webinar available: Inborn Errors of Metabolism Collaborative (IBEMC) efforts to inform the states in the WSGSC

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The Inborn Errors of Metabolism Collaborative (IBEMC) systematically collects information about the clinical progress of people that have conditions identified by newborn screening, focusing on inborn errors of metabolism. Data is used to learn about their survival, medical status, and long-term outcomes; and permit development of evidence-based practice in patient care.

Presenters on this webinar include Susan Berry, Mat Edick and Sally Hiner. Susan Berry is with the University of Minnesota and is the Clinical Co-PI for the IBEMC.  She has been involved from its inception, bringing the concept to the Region 4 Genetics Collaborative, and working to develop and implement long-term follow up for IBEM first as a workgroup, later as a HRSA Priority Project and most recently as an NIH supported R01.   Mat Edick joined MPHI (Michigan Public Health Institute) in April of 2015 as the Senior Research Scientist for the IBEMC. Sally Hiner, also with MPHI is the IBEMC Senior Project Coordinator and has also been with the project from its beginning with Region 4.

Recording of the webinar is available here.

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Jun 06 2016

Webinar June 20, 2016 from the Catalyst Center: Addressing Health Coverage Inequalities Among CSHCN in Your State

Published by under Education

Concerned about health coverage inequities among CSHCN in your state? The Catalyst Center has created “Health Care Coverage and Financing for Children with Special Health Care Needs: A Tutorial to Address Inequities” to help Maternal and Child Health (MCH) leaders, family leaders, and other stakeholders understand and address health care coverage inequities that exist among vulnerable subgroups of CSHCN based on race, ethnicity, language, immigration status, and level of functional difficulty .

Join the Catalyst center to “get acquainted” with this new tutorial. MCH staff from Alaska and Michigan will share strategies they use to work towards health equity for CSHCN in their states.

Register for the webinar here.

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Jun 06 2016

WSGSC hosted Telegenetics Training August 2, 2016 in Tucson, AZ – enrollment complete

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Enrollment for the next Genetic Counselor Telegenetics training has closed.  This training will include ten self-paced on-line modules, two webinars, and a one day in-person, hands-on session.  The in-person session is scheduled for August 2, 2016 in Tucson, AZ.  The WSGSC provides travel support for the in-person training and continuing education credits are provided for participants.  If you or a genetic counselor you know is interested in future trainings, please contact Michelle at michelle@hawaiigenetics.org for more information.

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Jun 06 2016

Registration open for the South Central Telehealth Forum August 1-2, 2016 in Nashville, TN

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Travel to Nashville, Tennessee for the 4th Annual South Central Telehealth Forum.  Presenters and Partners from across the country will share tools, resources and techniques on how they Drive Quality healthcare via telemedicine and mHealth.

Topics Include:

  • mHealth/Remote Patient Monitoring
  • Safe Practice
  • Reimbursement
  • Chronic Disease
  • School-Based Programs
  • Measuring Outcomes
  • Rural and Federal Policy
  • Real-World Academic, Hospital and Clinic Examples
  • Special sessions on telegenetics!

The meeting will help professionals connect and collaborate to build programs and improve patient outcomes.

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Dec 15 2015

Archived Webinar On Telemedicine And Mhealth Technologies

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Presenter: Janet Major, Associate Director of Facilities, Arizona Telemedicine Program and Vice Chair for the Technology Special Interest Group of the American Telemedicine Association

Learning Objectives:

  1. Hear about some of the current trends observed at the annual signature event for telemedicine technology.
  2. Take a virtual tour of the ATA 2015 Exhibit Hall & Showcase @ the Los Angeles Convention Center.
  3. Learn who and where you can go to get access to the best resources in telemedicine and telehealth technology.

Go here to access the archived webinar.

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Mar 24 2014

Video on Hereditary Cancer Screening and Prevention

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The Genetic Alliance, in partnership with the CDC Office of Public Health Genomics, has recently launched of a new video focused on hereditary cancer screening and prevention. Entitled “Using Genomics to Prevent Cancer Now,” this video is part of a larger effort to encourage the creation or expansion of programs focused on screening and prevention of cancer.

To watch the video, go to: http://www.geneticalliance.org/programs/genesinlife/publichealth

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Feb 18 2014

WSGSC Two-Part Webinar on Newborn Screening for SCID

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Part 1: SCID – The Disease, Diagnosis, Treatment, and Outcomes: Early vs. Late Treatment

Dr. Susan Skoda-Smith from Seattle Children’s Hospital will provide an overview of severe combined immunodeficiency (SCID), how it is diagnosed, and its treatment.

Please register for this webinar by clicking here: https://www4.gotomeeting.com/register/597231479

Webinar Dates and Times:

  • Guam: Tuesday, February 25th at 8:00am
  • Hawaii: Monday, February 24th at 12:00pm
  • Alaska: Monday, February 24th at 1:00pm
  • CA, OR, WA: Monday, February 24th at 2:00pm
  • Idaho: Monday, February 24th at 3:00pm

Part 2: State Updates about Newborn Screening for SCID

The second in a series of two webinars about newborn screening for SCID, this webinar will provide state updates of newborn screening for SCID.

Please register for this webinar by clicking here: https://www4.gotomeeting.com/register/554950743

Webinar Dates and Times:

  • Guam: Wednesday, March 12 at 8:00am
  • Hawaii: Tuesday, March 11 at 12:00pm
  • Alaska: Tuesday, March 11 at 2:00pm
  • CA, OR, WA: Tuesday, March 11 at 3:00pm
  • Idaho: Tuesday, March 11 at 4:00pm

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