On May 1^st, the Global Genes Project presented a webinar entitled “Essential Health Benefits: How this Provision Under the Affordable Care Act Could Affect Access to Rare Disease Therapies and Treatments.” To view the recorded webinar, go to: http://globalgenes.org/essential-health-benefits-webinar/

On April 16^th, Lianne Hasegawa gave a presentation entitled, “Using Telemedicine to Provide Pediatric Genetic and Follow-up Newborn Screening Services” on a webinar hosted by the South Central Telehealth Resource Center and the Heartlands Regional Genetics and Newborn Screening Collaborative. To view a recording of this webinar, go to: http://learntelehealth.org/media/thought-symposium/using-telemedicine-hawaii/

The National Coordinating Center for the Regional Genetics Collaboratives is hosting a webinar about payment reform and the Affordable Care Act presented by Meg Comeau from the Catalyst Center. The webinar is being held on Wednesday, April 24 at 2:00pm Pacific time.

To register for this webinar, go to: https://www2.gotomeeting.com/register/307585826

The Global Genes, RARE Project are hosting a webinar entitled, “Understanding Essential Health Benefits: How this provision of the Affordable Care Act could affect access to rare disease treatments and therapies.”

The webinar will be held on May 1^st at 11:00am Pacific time.

For more information or to register, go to: http://globalgenes.org/essential-health-benefits-webinar/

The Health Resources and Services Administration (HRSA) is sponsoring a presentation on how safety net providers are likely to be affected when the Affordable Care Act’s major coverage expansions become effective in 2014. The presentation will address how these changes are expected to impact these providers’:

• patient populations;
• business environment, and
• roles and responsibilities as employers.

The session will also review the expectations for health insurers participating in the Marketplaces to contract with a subset of Essential Community Providers and include information on how to educate patients on new insurance options.

The webinar will be held on Wednesday, April 3rd at 12pm Eastern Time.

To join the webinar, go to: http://services.choruscall.com/links/hrsa130403.html

The Genetic Alliance is sponsoring a series of monthly webinars about privacy and progress in whole genome sequencing. The webinars are held on the second Tuesday of each month at noon Eastern time, beginning in February and ending in December.

For more information about the webinars, or to register for the webinars, go to: http://www.geneticalliance.org/webinars

The WSGSC is hosting a webinar discussing issues surrounding payment reform and the Affordable Care Act. Meg Comeau, from the Catalyst Center, will be presenting information on this topic and answering questions relating to payment reform. The date and time of the webinar, adjusted for the various states/territory in our region, is below:

Guam: Thursday, April 25 at 7:00am
Hawaii: Wednesday, April 24 at 11:00am
Alaska: Wednesday, April 24 at 1:00pm
CA, OR, WA: Wednesday, April 24 at 2:00pm
Idaho: Wednesday, April 24 at 3:00pm

To register for this webinar, go to: https://www4.gotomeeting.com/register/182023007

For more information, contact Lianne Hasegawa at lianne@hawaiigenetics.org

The first webinar in the series by the DSCSHN National Centers will be given by the National Center for Family Professional Partnerships with National Family Voices. The webinar will take place on October 23, 2012 at 3:00pm (EST). Reserve your spot now!

This monthly educational webinar series was started to promote the work of the National Centers to MCHB’s grantees. On the 4th Tuesday at 3:00pm (EST) each month, one of the National Centers will discuss their current activities, available materials, and opportunities for technical assistance for MCHB grantees and state programs. The objective of this series is to provide grantees the opportunity to learn about the resources the National Centers have to offer.

To join the meeting, please visit: https://hrsa.connectsolutions.com/dscshnmonthly/

The next webinar of the Time Out for Genetics webinar series, Genetics and Coding: What the Primary Care Provider Needs to Know, will take place on Thursday, September 27 from 12:00-12:30pm Central. Reserve your spot now!

This educational webinar series is presented by the Genetics in Primary Care Institute (GPCI) – a cooperative agreement between the American Academy of Pediatrics and the Maternal and Child Health Bureau. The objective of this 10-part series is to increase awareness and education regarding the provision of genetic medicine in primary care practice. It is designed for primary care clinicians, pediatricians, pediatric sub-specialists, family physicians, nurse practitioners, genetic counselors, geneticists, and other stakeholders.

For more information and to register, please visit: http://www.medicalhomeinfo.org/GPCI.aspx#webinar

The Newborn Screening Translational Network (NBSTRN), the Network for Public Health Law, the National Newborn Screening and Genetics Resource Center (NNSGRC), and the Association for Public Health Laboratories (APHL) are jointly presenting a webinar series covering legal issues and related ethical and policy issues concerning secondary uses of dried blood spots and associated data.

The next webinar in this series, Protection of Human Research Subjects, is scheduled for Thursday, July 26 at 1:00pm Eastern.

For more information, click here.