Archive for the 'Education' Category

Feb 19 2020

Sickle Cell Disease Training and Mentoring Program (STAMP)

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The U.S. Department of Health and Human Services (HHS) Office of Minority Health (OMH) has announced a new pilot program to train primary care providers on the basics of sickle cell disease. The Sickle Cell Disease (SCD) Training and Mentoring Program (STAMP) is a collaboration between OMH, the Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau, and the HRSA Bureau of Primary Health Care. STAMP is designed to equip providers with the appropriate knowledge, skills, and co-management support to care for low-complexity patients living with sickle cell disease. The program consists of free web-based trainings that will be offered from January – June 2020. Visit OMH’s sickle cell disease website to learn more about the program, register and see a calendar of upcoming trainings. Learn More.

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Feb 19 2020

Subscribe to the LIFT Newsletter

Published by under Education

Once a quarter NCC publishes the LIFT newsletter to provide an overview of the current genetic service delivery system. In addition to the quarterly memo, LIFT alerts are published when there is breaking policy news.  The recent LIFT newsletter included updates on the following legislation:

    • Newborn Screening Saves Lives Reauthorization Act
    • Medical Nutrition Equity Act
    • Access to Genetic Counselor Services Act
    • Genetic Information Privacy Act
    • Protecting Personal Health Data Act

Click here to see past newsletters and subscribe:  http://bit.ly/nccrgcLIFT

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Feb 19 2020

Bridging the Gap Medical Interpreter Training

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The Bridging the Gap Medical Interpreter Training prepares individuals to become successful medical interpreters. This language-neutral course, taught in English, is open to speakers of all languages. Prior experience in the medical and/or interpreting fields is helpful but not required! Students will learn the necessary skills to become a qualified medical interpreter by participating in group activities, gaining practice interpreting from day-one onward, and through the instruction and insight of our experienced trainers.   Multiple dates are available in 2020.

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Jan 16 2020

Upcoming Educational Webinars

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  • January 23, 1:00 pm ET – Rural Health Research Gateway:Rural Disparities in Health and Healthcare by Race and Ethnicity. This webinar will address differences in county-level premature death, individual-level differences in health status and differences in healthcare access and use by county racial and ethnic composition. Register.
  • January 27, 10:00 am ET – Center for Disease Control – Ethical, Legal, and Social Implications of Human Genomics Research: Past, Present and Future. https://www.cdc.gov/genomics/events/ELSI_2020.htm

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Oct 17 2019

Family Advocates

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To better understand patient concerns, Tamara Bakewell our Oregon family advocates organized a Webinar on “Myths and Misconceptions of Genetic Services”. Genetic counselor Austin Bland answered several common misconceptions on genetic services that their patients mention in clinic visits, including “There’s nothing like this in my family – it can’t be genetic”, “They sell my information”, “The test is not reliable”, “This is my family’s fate”, and that “testing is too expensive”.  The WSRGN can help with webinars such as this one if you are interested.

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Oct 17 2019

Archived Webinar: Newborn Screening Bioinformatics 101

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The archived recording of the Newborn Screening Bioinformatics 101 National webinar is available. The webinar provides an overview of bioinformatics and describes how it applies at multiple levels, with newborn screening as the use case. 

Contact Sari Edelman with any questions.

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Oct 17 2019

Virtual Roundtable on States’ Experiences Screening for Spinal Muscular Atrophy

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Thursday, October 24, 2019 | 2:00–3:30 pm ET

Webinar Registration Link

This first installment of the SMA webinar series will provide a platform for state programs to share their knowledge and experiences implementing screening for SMA. Speakers will answer questions regarding implementation methods and activities, follow up best practices, and educational strategies related to SMA. Attendees may submit questions in advance for the speakers to address during the webinar to Kshea Hale by October 18, 2019.

This webinar will provide 1.0 P.A.C.E.® contact hour for participants who successfully complete this webinar.

Contact Kshea Hale if you have any questions.

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Mar 28 2018

Updated ACT Sheet and New Algorithm for Pompe Disease

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The updated Pompe Disease ACT Sheet and newly developed Pompe algorithm are now available on the ACMG website.  The ACTion(ACT) Sheet describes the short-term actions a health professional should follow in communicating with the family and determine the appropriate steps in the diagnostic process. The accompanying algorithm presents an overview of the basic steps involved in determining the final diagnosis in the infant.

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Mar 28 2018

CDC Public Health Genomics Resources

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The CDC Office of Public Health Genomics provides timely and credible information for the effective and responsible translation of genomics research into public health and health care.  Their website has a wealth of information, from Genetics 101 resources, to Family Health History information, to the Public Health Genomics Knowledge Database (PHGKD).  The PHGKD is an online, continuously updated, searchable database of published scientific literature, CDC resources, and other materials that address the translation of genomic discoveries into improved health care and disease prevention.

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Mar 28 2018

State Public Health Genomics Programs Database

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The State Public Health Genomics Programs database has information about state public health programs and activities relevant to genomics. States have implemented genomics applications for Hereditary Breast and Ovarian Cancer syndrome, Lynch Syndrome, Familial Hypercholesterolemia, newborn screening, and more. Find relevant information from your own state or learn about what’s been accomplished in other states. You can filter results by condition and resource type (data, programs, education, policy, tools, and general information. You can also view the content of the database using State Genomics Implementation Map

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