HRSA shared that in October 2020 they initiated a launch of the legislatively mandated newborn screening information clearinghouse, the Newborn Screening Information Center (NBSIC). The NBSIC provides up-to-date information, materials, and resources about NBS in the United States. These resources help increase awareness, knowledge, and understanding of NBS and genetic conditions. Updates to the site occur quarterly, with NICHQ reaching out directly to a subset of states and territories via email and then a follow-up phone call. HRSA plans on doing a public launch in 2022 once all states and territories have had an opportunity to confirm their information.

If you have questions or concerns, please reach out to via email: newbornscreeninginfo@hrsa.gov