Nov 24 2017

November 2017 Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children

Published by at 4:37 pm under Announcements

The most recent meeting was held on November 8-9.  NewSTEPs presented an update about progress towards the newborn screening (NBS) timeliness goals outlined by the Committee.  There were other presentations regarding the evidence review for spinal muscle atrophy and the public health impact of severe combined immunodeficiency, carrier status in the context of NBS, and a review of long term follow up on NBS.  Reports from the Laboratory Standards and Procedures workgroup, Follow-up and Treatment workgroup, and Education and Training workgroup were also presented.

The next ACHDNC meeting will be held February 8-9, 2018.  For more information and links to webcasts of past meetings, click here.

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