Nov 24 2017

October SCID Quarterly Webinar

Published by at 4:27 pm under Education

This NewSTEPs webinar features an update on SCID newborn screening nationally and lessons learned from the SCID In-Person Meeting and is posted here.  Newborn screening experiences were also shared from the Utah and Tennessee newborn screening programs.

Southeast Regional Genetics Network Videos on the Emory University Metabolic Camp

Emory University holds an annual summer Metabolic Camp for adolescent girls and young women with inherited metabolic disorders, including phenylketonuria (PKU) and maple syrup urine disease (MSUD).  The research-based camp helps adolescent girls and young women learn how to care for their own health, and how to assure that they have healthy children, when and if they decide to start their own families.  Two videos about the program were developed by the Southeast Regional Genetics Network (SERN) and are available here and here.

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