Jun 23 2021

STEMM Organizations and Diversity, Equity and Inclusion – National Academies of Sciences, Engineering, and Medicine 2-day Summit

Published by under Education

Please join the National Academies of Sciences, Engineering, and Medicine as they convene a
2-day national summit on Addressing Diversity, Equity and Inclusion in 21st Century STEMM Organizations.

The summit will highlight how racism operates at different levels in science, technology, engineering, math, and medicine (STEMM) settings.

Register here: https://www.eventbrite.com/e/addressing-diversity-equity-inclusion-anti-racism-in-21st-century-stemm-tickets-154452267891

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Jun 23 2021

National Society of Genetic Counselors Annual Education Conference

Published by under Education

The NSGC Annual Conference showcases advancements across the breadth of the genetic counseling profession to provide education and build community. Attendees will gain knowledge of clinical and scientific best practices and insights into emerging research. The conference provides a unique opportunity to engage and network with colleagues and pursue professional development.

In order to provide you with the greatest flexibility, NSGC is excited to offer two different attendance options for the 40th Annual Conference – in-person in New Orleans or online through the NSGC Virtual Experience:

Register here: https://my.nsgc.org/event-registration

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Jun 23 2021

The Marfan Foundation Virtual Conference

Published by under Education

The first-ever Virtual Marfan Foundation Annual Conference will be held from July 8-11. This four-day event offers innovative ways to reconnect with old friends and make new ones through condition discussions, social events, and open virtual spaces to hang-out and share.

The medical sessions on Marfan, Loeys-Dietz, VEDS, and Stickler syndrome will feature leading experts in the field and will allow for robust question and answer exchanges.

There is no cost to register: https://www.tfaforms.com/4904021

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Jun 23 2021

New CDC Blog Post: Public Health Genomics Priorities for the Next Decade

Published by under Education

The CDC recently commented on its recommendations for public health genomics for the next decade. Read the post here: https://blogs.cdc.gov/genomics/2021/06/09/what-should-be/

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Jun 23 2021

APHL Hemoglobinopathy Educational Webinar

Published by under Education

APHL’s Hemoglobinopathy Workgroup is excited to host an upcoming webinar on June 30th from 2-3:30 pm ET. This webinar will provide an overview of identifying newborns who have been transfused and how to optimize newborn screening. It will discuss: Types of transfusions and how they can interfere with newborn screening results, protocols and case examples from four NBS programs for trying to uncover transfused babies on the hemoglobin screen, case examples and education materials from the follow-up perspective on transfusion.

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Jun 23 2021

WSRGN Virtual Career Fair 2021

Published by under Announcements

The WSRGN will be holding our second annual Virtual Career fair for two days this time, September 28th and 30th, to allow more students to visit. Genetic counseling is a unique and rewarding healthcare profession, and this virtual fair will help those interested to learn all about it! Join the fair to learn about this exciting profession, hear from professional societies, and connect with graduate degree genetic counseling programs across North America. Graduate programs and professional societies will have virtual “rooms” for students to visit and learn more about degree requirements, program information, and all other information about becoming a genetic counselor! Please let us know of any student channels to add to our Career Fair information dissemination list.

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Apr 07 2021

Family Advocates – Share your experience: Running a registry

Published by under Family Advocate

Many advocacy groups report being frequently contacted by other organizations to share their experience with operating registries. Help reduce this burden for you and for others by taking this survey from Genetic Alliance. Any advocacy organization who operates a registry is invited to reply. Genetic alliance will compile the answers and share the results with their network.

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Apr 07 2021

Vietnamese Translation of our acclaimed What to Expect from a Telehealth Visit animated video: “Những điều quý vị cần biết về cuộc khám bệnh qua Telehealth”

Published by under Telehealth

  • The WSRGN has created a Vietnamese transconversion of the What to Expect from a Telehealth Visit. You can find it at: https://youtu.be/MQeNKcT5l1g
  • More transconversions of the video are coming in Samoan, Mandarin, Cantonese, Korean, Tagalog, Ilocano, and Russsian.

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Apr 07 2021

WSRGN Announces Free On-Line Telehealth Training Course for Family Advocates

Published by under Telehealth

The Western States Regional Genetics Network (WSRGN) is excited to announce the launch of our free on-line telehealth training course for family advocate and other program staff to help families access services by telehealth and use them well.

The course gives a foundation of knowledge about telehealth and where to find telehealth resources to help families connect to services by telehealth. The seven modules are:

  • Introduction to Telehealth,
  • Overview of Telehealth Visits,
  • Telehealth Technology,
  • Best Practices for Telehealth Visits in a Patient’s Home,
  • Telehealth Policy and Legal Issue,
  • Coverage for Telehealth,
  • Family Resources for Telehealth

A course completion certificate is provided.  The estimated time to complete the seven modules is less than two hours.  To register and start the course, please go to: https://www.familytelehealthtraining.org/

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Apr 07 2021

New Health Program Manager Position at California Newborn Screening Program

Published by under Announcements

The California Department of Public Health (CDPH) has listed a new Health Program Manager I (HPM I) position to serve as the Chief of the NBS Follow-up Unit at the Genetic Disease Screening Program (GDSP). This position is located at the Richmond Campus in Contra Costa County in the San Francisco Bay area. CDPH is seeking qualified candidates to contribute to the Department’s important mission to advance the health and well-being of California’s diverse people and communities.

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