May 05 2017

Save the Date: Regional Summit on October 1-3, 2017 in Seattle, WA

Published by under Announcements

This year’s Regional Summit will be held in Seattle, WA on October 2-3, 2017 with a Family Advocates Work Group meeting scheduled for October 1, 2017.  Save the date on your calendars! We will begin contacting participants with details and travel coordination later this summer.

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May 05 2017

WSGSC and Heartlands Telegenetics Training Session in Tuscon, AZ a Great Success

Published by under Telehealth

The WSGSC and Heartland Genetics held a training session in Tuscon, AZ this April, which was a great success. The purpose of the training, which also includes webinars and completion of a series of online modules prior to the in-person meeting, is to introduce genetics providers to telemedicine equipment and how to incorporate telegenetics into clinical practice.

Please contact michelle@hawaiigenetics.org if you or a genetics provider you know is interested in future training dates.

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May 05 2017

Next ACHDNC Meeting to be held on May 11-12, 2017

Published by under Announcements

The next meeting of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) is scheduled for May 11-12, 2017. This meeting will be available in-person in Rockville, MD and via webinar. For more information, go to: https://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/

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May 05 2017

WSGSC and NCC Telegenetics and Evaluation – Health Outcomes Project

Published by under Telehealth

The WSGSC is working with the NCC Telegenetics and Evaluation Workgroups to plan and implement a series of meetings where genetic providers will identify health outcomes of genetics services that can be used to demonstrate the benefits and advantages of services provided, whether in-person or via interactive video-conferencing. Genetics providers from several regional collaboratives, including genetic counselors from the WSGSC will participate. The project is scheduled to conclude May 31, 2017, with the end of the current grant cycle.

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May 05 2017

Check out the latest NCC Collaborator Newsletter

Published by under General

Check out the latest NCC Collaborator Newsletter, for the final monthly newsletter of the 2012-2017 award period.

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May 05 2017

Family and Baby Expos in Seattle and Sacramento

Published by under General

To continue to better understand parents’ attitudes towards newborn screening for later onset disorders, education needs, and preferred contact methods, the Hawaii Genomics Section designed and distributed a short survey at the Seattle Family Expo on March 18 and 19, and the Sacramento Kids Expo on April 9 and 10. New and expectant parents coming to our booth were very interested in newborn screening, and we collected hundreds of completed surveys.

Huge and sincere thanks to the Washington and California State Departments of Health for all their time and invaluable help!

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May 05 2017

NCEMCH Video: Where to Find Maternal and Child Health Resources

Published by under Education

The National Center for Education in Maternal and Child Health (NCEMCH) has released a video, ‘Where to Find MCH Resources: An Introduction’, by John Richards and Keisha Watson. This 20 minute overview introduces sources of public health information for the MCH workforce, as well as proposes the need for further sources.

 

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Jan 17 2017

Next Telegenetics Training for Genetic Counselors – Tucson, AZ, April 3, 2017

Published by under Telehealth

Applications for the next *Telegenetics Training* course for genetic counselors are being accepted until *February 10th*.

The course includes:

  • 10 self paced on-line modules (about 15 minutes each)
  • 2 webinars (one 1 hour and one 1.5 hour)
  • 1 day in-person training at the Southwest Telehealth Resource Center in Tucson, AZ on April 3rd, 2017

CEUs are provided for all the components of the course.

*The Western States Genetic Services Collaborative will cover the cost of the CEUs for all components of the training and travel for the in-person session for successful applicants who work or plan to work in the WSGSC region (Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington).*

Please distribute the attached Training flyer about the training to people or organizations in your state that may be interested.

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Jul 08 2016

NCC Collaborator- July 2016 Edition Now Available!

Published by under Announcements

The July edition of the NCC Collaborator is available! This edition of the NCC Collaborator f.  To view the focuses on consumer engagement and family advocate involvement throughout the different regions. To vie this issue, click here.

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Jun 06 2016

New Prenatal Genetic Testing Video Series from Washington State Department of Health (DOH) and Genetic Support Foundation Now Available Online

Published by under General

Today, pregnant women are faced with deciding among an increasingly complex variety of prenatal genetic tests. It’s essential that they have access to resources that can educate them about these tests. Washington State law (RCW 70.54.220) and professional societies’ guidelines recommend that all pregnant women be offered options for prenatal screening and diagnosis. Women’s decisions about these testing options should be informed and consistent with their needs and values. The Screening and Genetics program collaborated with the Genetic Support Foundation (GSF), to produce a series of seven videos regarding prenatal genetic testing options.  The videos are available now on DOH’s YouTube Channel and are ready to be shared with patients. Here they can select among the series that includes:

1) How to Decide About Prenatal Genetic Testing
2) Conditions Commonly Tested for During Pregnancy
3) Prenatal Cell Free DNA Screening
4) Traditional Maternal Serum Screening
5) Prenatal Ultrasound
6) Chorionic Villus Sampling
7) Amniocentesis

These are also posted on our website to download. We hope that both patients and providers will find them useful. Expectant parents can watch at home and health care providers can download them to show patients during office visits. The storyboard development involved extensive audience testing with the intended audience of women of reproductive age as well as healthcare professionals, parents of children with genetic conditions, and leaders from advocacy groups.  Please take a moment to view the videos and consider sharing with colleagues, family and friends.

Feel free to share any comments you have at Genetics@doh.wa.gov

 

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