Resources

REPORTS AND PUBLICATIONS

Genetic Counselors and Health Literacy: the Role of Genetic Counselors in Developing a Web-Based Resource About the Affordable Care Act (posted on 12/19/14)
Infants Suspected to Have Very-Long Chain Acyl-CoA Dehydrogenase Deficiency from Newborn Screening (posted on 7/14/14)
Provision of Genetic Services on Guam (posted on 7/14/14)
Stakeholder Perspectives on Decision-Analytic Modeling Frameworks to Assess Genetic Services Policy (posted on 7/14/14)
Outcomes of Genetic Services: Creating an Inclusive Definition and Outcomes Menu for Public Health and Clinical Genetic Services (posted on 7/14/14)
Tell Us What You Need: Health Care Perspectives of Guam Families with Genetic Diagnoses (posted on 7/14/14)

VIDEOS

The WSRGN YouTube Channel (posted on 7/14/14)
Living with The Arctic Variant (posted on 7/2/2020)
March of Dimes: A Parent’s Guide to Newborn Screening (posted on 7/14/14)
A Parent’s Guide to Newborn Screening en Español (posted on 7/14/14)
A Video Interview with Dr. Francis Collins on the Genetic Information Non-Discrimination Act of 2008 (GINA) (posted on 3/13/2020)

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