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  • Home
  • About Us
    • Team Members
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  • Project Activities
  • State Information
    • Alaska
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  • Find a Clinic
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Resources

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REPORTS AND PUBLICATIONS

  • Genetic Counselors and Health Literacy: the Role of Genetic Counselors in Developing a Web-Based Resource About the Affordable Care Act (posted on 12/19/14)
  • Infants Suspected to Have Very-Long Chain Acyl-CoA Dehydrogenase Deficiency from Newborn Screening (posted on 7/14/14)
  • Provision of Genetic Services on Guam (posted on 7/14/14)
  • Stakeholder Perspectives on Decision-Analytic Modeling Frameworks to Assess Genetic Services Policy (posted on 7/14/14)
  • Outcomes of Genetic Services: Creating an Inclusive Definition and Outcomes Menu for Public Health and Clinical Genetic Services (posted on 7/14/14)
  • Tell Us What You Need: Health Care Perspectives of Guam Families with Genetic Diagnoses (posted on 7/14/14)

VIDEOS

  • The WSRGN YouTube Channel (posted on 7/14/14)
  • Living with The Arctic Variant (posted on 7/2/2020)
  • March of Dimes: A Parent’s Guide to Newborn Screening (posted on 7/14/14)
  • A Parent’s Guide to Newborn Screening en Español (posted on 7/14/14)
  • A Video Interview with Dr. Francis Collins on the Genetic Information Non-Discrimination Act of 2008 (GINA) (posted on 3/13/2020)

For more information about our project, please contact us.

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