Jun 23 2021

Telehealth Training for Family Advocate and Other Program Staff

Published by under Resources

The WSRGN continues to offer the free online telehealth training course for family advocates and other program staff that want to have a foundation of telehealth to help the families they serve.  The seven module course takes less than two hours to complete and the trainee receives a certificate of completion after they finish the course.

Anyone interested in taking the training course can go to: https://www.familytelehealthtraining.org/. Just register and do the modules at your own pace.

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Jun 23 2021

Transconverted “What to Expect from a Telehealth Visit” animated videos

Published by under Resources

The WSRGN has transconverted the animated video: “What to Expect from a Telehealth Visit” into Samoan and Mandarin Chinese:

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Jun 23 2021

STEMM Organizations and Diversity, Equity and Inclusion – National Academies of Sciences, Engineering, and Medicine 2-day Summit

Published by under Education

Please join the National Academies of Sciences, Engineering, and Medicine as they convene a
2-day national summit on Addressing Diversity, Equity and Inclusion in 21st Century STEMM Organizations.

The summit will highlight how racism operates at different levels in science, technology, engineering, math, and medicine (STEMM) settings.

Register here: https://www.eventbrite.com/e/addressing-diversity-equity-inclusion-anti-racism-in-21st-century-stemm-tickets-154452267891

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Jun 23 2021

National Society of Genetic Counselors Annual Education Conference

Published by under Education

The NSGC Annual Conference showcases advancements across the breadth of the genetic counseling profession to provide education and build community. Attendees will gain knowledge of clinical and scientific best practices and insights into emerging research. The conference provides a unique opportunity to engage and network with colleagues and pursue professional development.

In order to provide you with the greatest flexibility, NSGC is excited to offer two different attendance options for the 40th Annual Conference – in-person in New Orleans or online through the NSGC Virtual Experience:

Register here: https://my.nsgc.org/event-registration

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Jun 23 2021

The Marfan Foundation Virtual Conference

Published by under Education

The first-ever Virtual Marfan Foundation Annual Conference will be held from July 8-11. This four-day event offers innovative ways to reconnect with old friends and make new ones through condition discussions, social events, and open virtual spaces to hang-out and share.

The medical sessions on Marfan, Loeys-Dietz, VEDS, and Stickler syndrome will feature leading experts in the field and will allow for robust question and answer exchanges.

There is no cost to register: https://www.tfaforms.com/4904021

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Jun 23 2021

New CDC Blog Post: Public Health Genomics Priorities for the Next Decade

Published by under Education

The CDC recently commented on its recommendations for public health genomics for the next decade. Read the post here: https://blogs.cdc.gov/genomics/2021/06/09/what-should-be/

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Jun 23 2021

APHL Hemoglobinopathy Educational Webinar

Published by under Education

APHL’s Hemoglobinopathy Workgroup is excited to host an upcoming webinar on June 30th from 2-3:30 pm ET. This webinar will provide an overview of identifying newborns who have been transfused and how to optimize newborn screening. It will discuss: Types of transfusions and how they can interfere with newborn screening results, protocols and case examples from four NBS programs for trying to uncover transfused babies on the hemoglobin screen, case examples and education materials from the follow-up perspective on transfusion.

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Jun 23 2021

WSRGN Virtual Career Fair 2021

Published by under Announcements

The WSRGN will be holding our second annual Virtual Career fair for two days this time, September 28th and 30th, to allow more students to visit. Genetic counseling is a unique and rewarding healthcare profession, and this virtual fair will help those interested to learn all about it! Join the fair to learn about this exciting profession, hear from professional societies, and connect with graduate degree genetic counseling programs across North America. Graduate programs and professional societies will have virtual “rooms” for students to visit and learn more about degree requirements, program information, and all other information about becoming a genetic counselor! Please let us know of any student channels to add to our Career Fair information dissemination list.

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Apr 07 2021

Family Advocates – Share your experience: Running a registry

Published by under Family Advocate

Many advocacy groups report being frequently contacted by other organizations to share their experience with operating registries. Help reduce this burden for you and for others by taking this survey from Genetic Alliance. Any advocacy organization who operates a registry is invited to reply. Genetic alliance will compile the answers and share the results with their network.

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Apr 07 2021

Vietnamese Translation of our acclaimed What to Expect from a Telehealth Visit animated video: “Những điều quý vị cần biết về cuộc khám bệnh qua Telehealth”

Published by under Telehealth

  • The WSRGN has created a Vietnamese transconversion of the What to Expect from a Telehealth Visit. You can find it at: https://youtu.be/MQeNKcT5l1g
  • More transconversions of the video are coming in Samoan, Mandarin, Cantonese, Korean, Tagalog, Ilocano, and Russsian.

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