Jul 29 2020

The Minority Genetic Professionals Network (MGPN) supporting minority students and practicing genetics professionals

Published by under Announcements

There is no better time than now for racially and ethnically diverse students and professionals to join the MGPN. The MGPN is hosting several events in the coming months to support members in this time of isolation. These include workshops in healing from racial trauma, roll-out of a new-and-improved mentorship program, a virtual career fair, webinars featuring professional speakers, and much more.

Go to minoritygenetics.org to resister and find more information.

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Jul 29 2020

Save the Date for APHL 2020 NBS Virtual Symposium

Published by under Announcements

In place of APHL’s traditional in-person Newborn Screening Symposium, they are hosting the APHL 2020 Newborn Screening Virtual Symposium, an online event that will address state, national and international newborn screening, genetic testing and policy issues important to public health newborn screening systems. The virtual symposium will feature live and on-demand content, an interactive poster hall, an opportunity to engage with industry partners and representatives, as well as fun and engaging activities! Sessions will run from October 20 – November 12, with up to three sessions per day on Tuesdays and Thursdays (excluding holidays). Sessions will continue to be made available to attendees after the live event concludes. Access to e-poster presentations and the virtual exhibitor hall will be accessible throughout the symposium.

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Jul 29 2020

Save the Date: Advancing the Response to COVID-19 for Minority Communities

Published by under Announcements

The HHS Office of Minority Health (OMH)will host a virtual symposium on Thursday, September 17, 2020 to highlight state, Tribal, territorial and community-based efforts to address COVID-19 among racial and ethnic minority populations. The Advancing the Response to COVID-19: Sharing Promising Programs and Practices for Racial and Ethnic Minority Communities virtual symposium aims to support and disseminate promising practices, programs and strategies for combating COVID-19, especially in communities of color.

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Jul 29 2020

Advisory Committee for Heritable Disorders in Newborns and Children August meeting

Published by under Announcements

The next meeting for the Advisory Committee on Heritable Disorders in Newborns and Children will be held via webcast on Thursday, August 6, 2020, from 1:00 PM – 4:05 PM Eastern Time (ET) and Friday, August 7, 2020, from 10:00 AM – 1:30 PM ET. Meeting times are subject to change.

Registration: This meeting will be open to the public but advance registration is required. Please register online <https://www.cvent.com/d/jnq529> by 12:00 p.m. ET on August 5, 2020. For technical problems gaining access to the registration website, please email Amy Lang.

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Jul 29 2020

WSRGN Telegenetics Training Goes Virtual

Published by under Announcements

The WSRGN telehealth training is going totally virtual! Training dates will begin in the Fall.  Please contact Austin Bland (austin@hawaiigenetics.org) for more information.

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Jul 29 2020

WSRGN Telehealth Videos for Providers and Patients

Published by under Announcements

Using our experience in training providers to use telehealth and telegenetics, we have created short best practices and “how-to” videos for patients and providers.

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Jul 28 2020

WSRGN Updated Telehealth Resource Page

Published by under Telehealth

The WSRGN has redesigned our telehealth resources page, which includes links to help both patients and providers. https://www.westernstatesgenetics.org/telehealth-resources/

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Feb 19 2020

ACMG registration deadline

Published by under General

The 2020 ACMG Annual Clinical Genetics Meeting will be held in San Antonio from March 17-20.  Discounted registration is available until February 14. https://www.acmgmeeting.net/acmg2020/Public/mainhall.aspx?ID=3318&sortMenu=101000

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Feb 19 2020

HHS/CDC Pregnancy-Risk Data Available to Researchers

Published by under Resources

New data available to researchers by request. Pregnancy Risk Assessment Monitoring System (PRAMS) State-level 2018 Data. PRAMS provides data on maternal attitudes, experiences and behaviors around the time of pregnancy. PRAMS is currently funded in 50 sites and covers about 83% of all live births in the United States, including 47 states, New York City, Washington D.C. and Puerto Rico. Learn more.

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Feb 19 2020

Medicaid Service Policies

Published by under Resources

NCC compiles written genetic service policies from each state Medicaid program. Find information about your state here.

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