Many advocacy groups report being frequently contacted by other organizations to share their experience with operating registries. Help reduce this burden for you and for others by taking this survey from Genetic Alliance. Any advocacy organization who operates a registry is invited to reply. Genetic alliance will compile the answers and share the results with their network.

• https://docs.google.com/forms/d/e/1FAIpQLScgDTq-wsByVd70hyWKH0TGdUDpANdOItViax3xNOlnDDDEhw/viewform

Researchers at Utah State University are recruiting families of children recently diagnosed with hearing loss for a study that may help them gain confidence in managing hearing aid use and incorporate hearing aid care habits into their daily lives. They are recruiting parents of children birth to 42 months of age that have traditional behind-the-ear hearing aids. The study is exploring the benefits of a six-week eHealth intervention that provides parents with supportive accountability. Contact Dr. Karen Muñoz  for more information.